Living with AL Amyloidosis
I have AL amyloidosis with multiple organ involvement. Plasma cells in my bone marrow over produce light chain proteins which misfold to form amyloid light chains. These misfolded proteins have built up in my heart, liver, and kidneys, causing them to slowly fail. AL Amyloidosis is a rare and life threatening blood disorder for which there is no cure.
Self Care for the chronically ill: 10 Tips
I recently asked for help. Help from other chronically ill moms on how to handle this whole sick parenting thing. How can I take care of my kids on the days I can barely take care of myself? I got a lot of wonderful suggestions and feedback. Here are some tips from some real life sick moms on how to manage your self care so you can care for those kiddos too!