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Tag: amyloidosis research

Mackenzie’s Mission: The Voices of Amyloidosis

Mackenzie’s Mission: The Voices of Amyloidosis

Mackenzie was diagnosed with Amyloidosis when she was only 23 years old. After receiving an autologous stem cell transplant at the Mayo Clinic in Rochester, MN she is now in complete remission! Mackenzie’s Mission was founded to help spread awareness of this disease and to raise funds for research. In 2018, the first ever Play FORE the Cure golf tournament, plus donations throughout the year, raised over $164,000! Through their website,  Facebook page, and YouTube channel, Mackenzie’s Mission continues to create…

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The end of NEOD001

The end of NEOD001

I must say I was completely shocked when I heard of the end of the trial for NEO. Others I have talked to (people definitely more knowledgeable than I in the field of amyloids) had a feeling it was coming. I was convinced that this antibody was going to do wonders for the field of AL Amyloidosis. I was convinced that it was doing wonders for me! (I feel like maybe it did still help me even if they didn’t…

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