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Tag: AL amyloidosis

Health Update

Health Update

I have been living with AL Amyloidosis for almost three years now. My free light ratio continues to be normal! “I don’t expect your levels to increase anytime soon, and if they do, we’ll just zap them down again. For someone like you who has had a good response to treatment, and who’s organs continue to improve, your life expectancy is pretty much back to normal now.” Wonderful words of comfort from my hematologist. My kidneys continue to improve. My…

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Let’s Chat!

Let’s Chat!

Over the past few weeks I have had people reach out to me who have either just received a diagnosis of Amyloidosis, or who are in the process of being tested. Each of these people has expressed that they hesitated to contact me. Please don’t hesitate to contact me! My main reason for starting this blog and sharing my story was to help others like me. People who were sick and scared and searching for answers. Navigating a rare disease…

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