Over the past few weeks I have had people reach out to me who have either just received a diagnosis of Amyloidosis, or who are in the process of being tested. Each of these people has expressed that they hesitated to contact me. Please don’t hesitate to contact me!

My main reason for starting this blog and sharing my story was to help others like me. People who were sick and scared and searching for answers. Navigating a rare disease like Amyloidosis either for yourself or a loved one is tricky and frightening. But there are others out there who can help.

If you or a loved have Amyloidosis or think you have Amyloidosis please don’t hesitate to contact me. You can do so through the contact page on this blog.

If you are looking for more information about Amyloidosis check out the Canadian Amyloidosis Support Network, The Amyloidosis Foundation , Amyloidosis Support Groups, Amyloidosis Research Consortium and Mackenzie’s Mission. They are all excellent resources.

I wish you all the best in your fight!

Lori