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Tag: chronic illness

10 lessons I hope my kids learn from my disease

10 lessons I hope my kids learn from my disease

My disease has taken from my children. It took me away for almost a year of their lives. As I battled my illness I was not able to be a main caregiver for them. There were many things I missed out on. Time was taken from us. It has caused them stress. It has made them worry. It has made them sad. The negative impacts are obvious. But what about the ways it can positively affect them? I set an…

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Living with AL Amyloidosis

Living with AL Amyloidosis

I have AL amyloidosis with multiple organ involvement. Plasma cells in my bone marrow over produce light chain proteins which misfold to form amyloid light chains. These misfolded proteins have built up in my heart, liver, and kidneys, causing them to slowly fail. AL Amyloidosis is a rare and life threatening blood disorder for which there is no cure.